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Share & Care Family Conference and Scientific Meeting 2025!

Families are invited to an unforgettable four-day, three-night conference at the Embassy Suites in vibrant Minneapolis. Attend expert-led sessions from world-renowned medical institutions, build meaningful connections with other families, and enjoy fun-filled outings to the Mall of America – A truly enriching experience that provides valuable support for your child and creates memories that last a lifetime.

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Most importantly, we are proud to support Dr. Kang’s Natural History Study—a critical research project shaping the future of care. Hosting this event in Minneapolis allows us to participate directly in this study, and your involvement helps increase funding and accelerate progress.

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Registration is now open and will close on June 31st.
We can’t wait to see you there!

Peter B. Kang, MD

"For nearly two decades, Share and Care has been a valuable partner in my journey to understand Cockayne syndrome better, help improve care, and help develop new therapies. Their patient conferences provide fantastic opportunities for patients and families to mix with health care professionals and scientists so that we can all work together for the benefit of patients with Cockayne syndrome."

CONFERENCE DETAILS

AUG 7TH - 10TH 2025

7901 34th Avenue South

Bloomington, Minnesota 55425

​Join us at the beautiful Embassy Suites by Hilton Minneapolis Airport, only 5 minutes from the Minneapolis-St. Paul International Airport and the Mall of America!

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Share & Care provides each family with a complimentary hotel room for the whole conference, along with free meals, t-shirts, group outings, and extra hospitality needs.

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This hotel has a free shuttle to and from the airport, complimentary breakfast, and an indoor pool! 

Visit their website for more details.

Featured Events

Personal care

Receive personal care from top specialists

Expert Presentation Topics Include:​

  • Neurology

  • Genetic Counseling

  • Physical Therapy

  • Diet and Nutrition

  • Palliative Care and Hospice

  • Dermatology

  • Cochlear Implants and Speech Therapy

  • Ophthalmology

Dr. Kang and Kael

Participate in clinical research

Our patient network plays a key role in supporting Dr. Kang's Natural History Study to Develop Gene Therapies at the University of Minnesota. We’re proud to contribute to the research process and foster opportunities for continued progress and funding.

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Visit their site for more information.

Noe and his family

Make memories that last a lifetime

  • Kids participate in tons of fun activities and entertainment during conference events

  • Families will explore the Mall of America on outings for moms, dads, and siblings​

  • Bereaved parents can attend a grief meeting prior to a group butterfly release

  • Our final night includes a party, a silent auction, and your favorite Star Wars characters!

We can't wait to see you!

Check our Facebook for more updates. 

This conference would not be possible without the help and generosity of The Luke O'Brien Foundation, as well as everyone who created fundraisers. From the bottom of our hearts, we thank you for your support.

Your donations have given us the ability to get more people in need of care to the conference.
See our donation page to see how you can help families attend. 

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