These Kids Need You.

​

Imagine learning your child has a rare disease—one so uncommon that most doctors don’t even know what it is, let alone how to treat it. You’re scared, overwhelmed, and out of options.

​

Now imagine being told there is hope—a research team that’s ready to help. But there’s a catch: you can’t afford to get there.

​

That’s the heartbreaking reality for many of the families we serve.

​

We’re hosting an event that brings together top researchers, clinical trials, and care providers—all in one place. For many families, this could be the first real step toward answers, treatment, and support.

​

But these children can’t get there without help.

​

Your donation directly covers travel and lodging for families who would otherwise be left out. The more children who attend, the more research moves forward. That means more funding, more progress, and more hope—for all families.

​

These kids are innocent. Their families are doing everything they can. But they shouldn’t have to do it alone.

​

You can be the reason a child gets help. Please donate today.