Welcome to the group! You can connect with other members, ask questions, get updates, and share photos and videos. This is a public group, allowing friends and family, and anyone interested in learning or sharing information to help individuals living with Cockayne syndrome and Trichothiodystrophy. We also have a private group for parents and caregivers, providing a safe space for discussions of sensitive topics that families sometimes do not want to share publicly.
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Share & Care for Rare | CS and TTD Network
Public·1 member
Welcome to the group! You can connect with other members, ask questions, get updates, and share photos and videos. This is a public group; allowing friends and family and anyone interested in learning or sharing information to help individuals living with Cockayne syndrome and Trichothiodystrophy. We also have a private group for parents and caregivers, providing a safe space for sensitive topic discussions that families sometimes do not want to share publicly.
1 View
Welcome to the group! You can connect with other members, ask questions, get updates, and share photos and videos. This is a public group; we also have a private group for parents and caregivers, providing a safe space for sensitive topic discussions that families sometimes do not want to share publicly.
1 View
Welcome to our group Share & Care for Rare | CS and TTD Network! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.
1 View
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