Share & Care for Rare | CS and TTD Network

Welcome to the group! You can connect with other members, ask questions, get updates, and share photos and videos. This is a public group, allowing friends and family, and anyone interested in learning or sharing information to help individuals living with Cockayne syndrome and Trichothiodystrophy. We also have a private group for parents and caregivers, providing a safe space for discussions of sensitive topics that families sometimes do not want to share publicly.